Correlation of Social Support and Mother's Self-Management of Care for a Child with A Chronic Condition

Rinik Eko Kapti; Nurona Azizah; Aprilia Nur Kasanah; Luh Putu Tania Ambara Wati; Lilik Supriati; Ari Damayanti Wahyuningrum

doi:10.30994/jnp.v8i4.863

Authors

Rinik Eko Kapti Nursing Department, Faculty of Health Sciences, Universitas Brawijaya, Malang, East Java, Indonesia https://orcid.org/0000-0002-7016-0136
Nurona Azizah Nursing Department, Faculty of Health Sciences, Universitas Brawijaya, Malang, East Java, Indonesia
Aprilia Nur Kasanah Student of Nursing Profession Program, Nursing Department, Faculty
Luh Putu Tania Ambara Wati Student of Nursing Profession Program, Nursing Department, Faculty
Lilik Supriati Nursing Department, Faculty of Health Sciences, Universitas Brawijaya, Malang, East Java, Indonesia https://orcid.org/0000-0002-8533-3319
Ari Damayanti Wahyuningrum Departement of Nursing Science Widyagama Husada Health Science College, Malang, Indonesia https://orcid.org/0009-0008-6343-5382

DOI:

https://doi.org/10.30994/jnp.v8i4.863

Keywords:

chronic conditions in children, self-management, social support

Abstract

Background: Mothers caring for children with chronic conditions often experience physical and psychological exhaustion, which affects their ability to master the required self-management skills. Social support is needed by mothers to master self-management of childcare with chronic conditions.

Purpose: To analyze the relationship between social support and maternal self-management

Methods: This study used a quantitative descriptive method with a cross-sectional research design. Data collection used the Patient-Perceived Self-Management Tasks questionnaire and the MOS Social Support Survey Instrument by RAND. Both questionnaires had been tested for validity and reliability before being used. The population were mothers who care for children with chronic conditions. A total of 204 participants were included in this study. The sample was obtained using purposive sampling by approaching eligible mothers in pediatric inpatient wards at selected hospitals. Data analysis used the spearman correlation test.

Results: This study shows that the greatest social support is from a partner, with an average of 83.25, and the lowest support is support from friends, with an average score of 61.24, while the average value of maternal self-management is 61.48. The results also show a relationship between social support, namely partner support, friend support and health worker support on self-management of mothers caring for children with chronic conditions, while there is no significant relationship between health worker support and self-management of mothers caring for children with chronic conditions.

Conclusion:

Health workers need to maximize the social support mothers receive so that mothers can master and practice adequate self-management to achieve optimal health for children with chronic conditions.

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References

Bailey, J., Oliveri, A., & Levin, E. (2013). Children with special health care needs: Impact of health care expenditures on family financial burden. Bone, 23(1), 1–7. https://doi.org/10.1007/s10826-009-9286-6.Children.

Barrio Cortes, J., Suárez Fernández, C., Bandeira de Oliveira, M., Muñoz Lagos, C., Beca Martínez, M. T., Lozano Hernández, C., & del Cura González, I. (2020). Chronic diseases in the paediatric population: Comorbidities and use of primary care services. Anales de Pediatría (English Edition), 93(3), 183–193. https://doi.org/10.1016/j.anpede.2019.12.006.

Bravo, L., Killela, M. K., Reyes, B. L., Santos, K. M. B., Torres, V., Huang, C. C., & Jacob, E. (2020). Self-Management, Self-Efficacy, and Health-Related Quality of Life in Children With Chronic Illness and Medical Complexity. Journal of Pediatric Health Care, 34(4), 304–314. https://doi.org/10.1016/j.pedhc.2019.11.009.

Bukini, D., Msirikale, I., Kanza, C., Odengo, J., Maingu, D., Masamu, U., Manji, K., Makani, J., & Mbekenga, C. (2022). The contribution of social and family networks in supporting care of children with sickle cell disease in Tanzania Daima. Scientific African, 114(June), e00146. https://doi.org/10.1016/j.sciaf.2019.e00146.

Cousino, M. K., & Hazen, R. A. (2013). Parenting stress among caregivers of children with chronic illness: A systematic review. Journal of Pediatric Psychology, 38(8), 809–828. https://doi.org/10.1093/jpepsy/jst049.

Duncan, T. S., Engström, J., Riggare, S., Hägglund, M., & Koch, S. (2022). Meeting the Burden of Self-management: Qualitative Study Investigating the Empowering Behaviors of Patients and Informal Caregivers. Journal of Participatory Medicine, 14(1), 1–13. https://doi.org/10.2196/39174.

Dunst, C. J. (2022). Systematic Review and Meta-Analysis of the Relationships Between Family Social Support and Parenting Stress, Burden, Beliefs and Practices. International Journal of Health and Psychology Research, 10(4), 1–22. https://doi.org/10.37745/ijhpr.13/vol10n4122.

Felizardo, M. J. de A., Silva, J. B. da, Neves, E. T., & Duarte, E. D. (2022). Ability of management of families of children with chronic conditions for care at home. Escola Anna Nery, 26, 1–8. https://doi.org/10.1590/2177-9465-ean-2022-0071en.

Kim, J., Chae, H., & Kim, Y. (2024). Spousal support, parent–nurse partnership and caregiver burden among parents of children with chronic diseases: A cross-sectional study. Journal of Clinical Nursing, 33(7), 2649–2661. https://doi.org/https://doi.org/10.1111/jocn.16985.

Kurniawan, A., Wulandari, N., & Yuniasanti, R. (2022). A Support Program For Mothers As Caregivers Of Children With Disabilities In Indonesia. International Journal Of Community Service, 2(1), 17–21. https://doi.org/10.51601/ijcs.v2i1.68.

Lancaster, K., Bhopti, A., Kern, M. L., Taylor, R., Janson, A., & Harding, K. (2023). Effectiveness of peer support programmes for improving well-being and quality of life in parents/carers of children with disability or chronic illness: A systematic review. Child: Care, Health and Development, 49(3), 485–496. https://doi.org/10.1111/cch.13063.

Lappalainen, P., Pakkala, I., Strömmer, J., Sairanen, E., Kaipainen, K., & Lappalainen, R. (2021). Supporting parents of children with chronic conditions: A randomized controlled trial of web-based and self-help ACT interventions. Internet Interventions, 24. https://doi.org/10.1016/j.invent.2021.100382.

Lovell, B., Moss, M., & Wetherell, M. A. (2012). With a little help from my friends: Psychological, endocrine and health corollaries of social support in parental caregivers of children with autism or ADHD. Research in Developmental Disabilities, 33(2), 682–687. https://doi.org/10.1016/j.ridd.2011.11.014.

Martin, F., Clyne, W., Pearce, G., & Turner, A. (2019). Self-Management Support Intervention for Parents of Children with Developmental Disorders: The Role of Gratitude and Hope. Journal of Child and Family Studies, 28(4), 980–992. https://doi.org/10.1007/s10826-018-01308-1.

Moriwaki, M., Yuasa, H., Kakehashi, M., Suzuki, H., & Kobayashi, Y. (2022). Impact of social support for mothers as caregivers of cerebral palsy children in Japan. Journal of Pediatric Nursing, 63, e64–e71. https://doi.org/10.1016/j.pedn.2021.10.010.

Ngo, D., Aouad, P., Goodison-Farnsworth, M., Gorrie, A., Kenmuir, T., & Jaaniste, T. (2023). Impacts of paediatric chronic pain on parents: A qualitative study. Child: Care, Health and Development, 49(4), 645–656. https://doi.org/10.1111/cch.13079.

Olij, C., Vos, M., van Oostrum, N., van Etten- Jamaludin, F., & Maaskant, J. (2021). Effective Interventions to Support Self-management for Parents of Children with a Chronic Condition: A Systematic Review. Maternal and Child Health Journal, 25(12), 1842–1865. https://doi.org/10.1007/s10995-021-03244-x.

Pop-Jordanova, N. (2023). Chronic Diseases in Children as a Challenge for Parenting. Prilozi, 44(1), 27–36. https://doi.org/10.2478/prilozi-2023-0004.

Porter, L. S., Baucom, D. H., Bonner, M., Linardic, C., & Kazak, A. E. (2019). Parenting a child with cancer: A couple-based approach. Translational Behavioral Medicine, 9(3), 504–513. https://doi.org/10.1093/tbm/ibz016.

Qudsi, H. A., & Rizkillah, R. (2023). The Social Support, Maternal Stress, and Social-Emotional Development of Preschool Children among Working Mothers’ Family during COVID-19. Journal of Family Sciences, 8(1), 70–85. https://doi.org/10.29244/jfs.v8i1.42737.

Rafferty, K. A., Nemmers-Bello, S., Tietz, S., & Lipovac, M. (2022). Mothers’ Support Preferences With Their Chronically Ill Child’s Health Care Team. Western Journal of Nursing Research, 44(10), 912–919. https://doi.org/10.1177/01939459211030338

Silva, N., Pereira, M., Otto, C., Ravens-Sieberer, U., Canavarro, M. C., & Bullinger, M. (2019). Do 8- to 18-year-old children/adolescents with chronic physical health conditions have worse health-related quality of life than their healthy peers? a meta-analysis of studies using the KIDSCREEN questionnaires. Quality of Life Research, 28(7), 1725–1750. https://doi.org/10.1007/s11136-019-02189-7.

Svavarsdottir, E. K., Kamban, S. W., Konradsdottir, E., & Sigurdardottir, A. O. (2020). The Impact of Family Strengths Oriented Therapeutic Conversations on Parents of Children with a New Chronic Illness Diagnosis. Journal of Family Nursing, 26(3), 269–281. https://doi.org/10.1177/1074840720940674.

Treleaven, E. (2023). The relationship between extended kin resources and children’s healthcare utilization: An analysis of family networks. Social Science and Medicine, 321(February), 115720. https://doi.org/10.1016/j.socscimed.2023.115720.

van der Laan, S. E. I., Berkelbach van der Sprenkel, E. E., Lenters, V. C., Finkenauer, C., van der Ent, C. K., & Nijhof, S. L. (2023). Defining and Measuring Resilience in Children with a Chronic Disease: a Scoping Review. Adversity and Resilience Science, 4(2), 105–123. https://doi.org/10.1007/s42844-023-00092-2.

Weiß, M., Jachnik, A., Lampe, E. C., Gründahl, M., Harnik, M., Sommer, C., Rittner, H. L., & Hein, G. (2024). Differential effects of everyday-life social support on chronic pain. BMC Neurology, 24(1), 1–9. https://doi.org/10.1186/s12883-024-03792-z.

Yang, J., Lin, L., Gao, Y., Wang, W., & Yuan, L. (2022). Interventions and strategies to improve social support for caregivers of children with chronic diseases: An umbrella review. Frontiers in Psychiatry, 13. https://doi.org/10.3389/fpsyt.2022.973012.